News & Views on Systemic Body Odor and Halitosis such as trimethylaminuria TMAU. If you have fecal odors or bowel odors it may be metabolic/systemic

Showing posts with label metabolic malodor patient advocacy. Show all posts
Showing posts with label metabolic malodor patient advocacy. Show all posts

12 March 2015

BORC recorded call with London TMAU nutritionist

Body Odor Resource Center
Thanks to Lisa of the Body Odor Resource Center for arranging another great phone conference call for the trimethylaminuria (TMAU) community today.

This time the guest was :
Kit Kaalund Hansen of the Metabolic Kitchen London

You can listen to the call and previous conference calls on the BORC website
listen to BORC recorded conference calls


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18 July 2014

Young UK TMAU lady on Irish Radio


Cassie is a young British lady looking to raise awareness of trimethylaminuria (TMAU) as it is a disorder that the public and health professionals are unaware of. Here she helps all sufferers by appearing on an Irish Radio show to discuss her TMAU. The interview was on the popular nid-morning Tubridy show on Irish national radio station RTE2FM. Such media appearances have a big impact on raising awareness. Most times the person appearing says they heard of the disorder from a previous media appearance.

17 April 2014

BORC Podcast of Dr Robin Lachmann conference

BORC (Body Odor Resource Center) has been arranging a number of conference calls with people that may be of interest to people who have trimethylaminuria (TMAU)

The most recent conference call was with Dr Robin Lachmann of the Charles Dent  Metabolic Unit in London. Dr Lachmann has a few years background in seeing TMAU patients.

A podcast of the conference call can be heard on the BORC podcast website
Dr Robin Lachmann conference call with BORC

BORC youtube channel : link

My view on TMAU
Personally I think people with a problem with their FMO3 enzyme may be prone to smelling of various sulfides and amines that are oxidized by FMO3. This would include trimethylamine but it may be a 'small player' in the number of compounds the person smells of. TMAU came about because the professionals at the time were only looking for trimethylamine. There has been no attempts to look for other compounds. However TMAU is a useful lever to rasie awareness of the concept of metabolic malodors, and trimethylamine should also  be a good biomarker of FMO3 function which I suspect is the main enzyme responsible for most cases of metabolic malodor.

13 April 2014

Ellie interviewed about TMAU in UK media

Ellie has been diagnosed positive for trimethylaminuria (TMAU) and this week appeared in many UK media platforms to be interviewed about her TMAU. This included newspapers, radio and TV. It was very much like a UK TMAU Awareness Week. Ellie has previously appeared on the Food Hospital TV show.


Ellie on UK mid-morning UK national TV show 'This Morning'

On BBC Radio Oxford On BBC Radio 5live On BBC Radio Berkshire


Ellie in the papers :
 Ellie talks about TMAU in the Daily Mail
 Ellie talks about TMAU in the Daily Star
 Ellie talks about TMAU in the Daily Mirror 

26 March 2014

Body Odor Resource Center website

This is the website of the Body Odor Resource Center
Run by Lisa Marie Mardis

Here she talks about TMAU on youtube



Lisa is arranging a phone conference with Dr Robin Lachmann in April 2014
April 10 : 10am CDT (for 30 minutes)
Conference Phone Number : toll free conference call. 1 888-602-8608
(note : may be expensive from overseas or via cellphone)
Details here

re Email sub service : Google is stopping this service JULY 21 new post emails will no longer happen

TMAU Stories

systemic BO/halitosis important links

MEBO Research malodor study 2016

Youtube

FMO3 reference

Blog Archive

TMAU/FMO3 research

Systemic Body Odor links

email :
sysbodyodor@gmail.com

Do you have systemic body odor ?

FMO3 Survey Form

FMO3 DNA test result survey
for those who have FMO3 DNA tested
survey still OPEN

TMA blocker pill (links)

P&G - Cleveland press release aug 2015
1st mention of 'DMB pill' dec 2015
FMO3 DNA testing
Update Aug 17 :
Genos is back with it's EXOME test
link

Note :
Exome/Genome testing may be better option than single gene testing.

See this post : link

Note : Genos Exome Testing.

Exome testing is almost the same price now as single gene testing. Also Genos is consumer friendly, which standard DNA labs are not.

So the blog offer to test solely for FMO3 is almost obsolete, and so no longer offered.


Does Genos fully sequence FMO3 gene ?

At the moment it is not clear, but hoped this will become clear over the next few months

Note : possible 'wild west' way of testing FMO3
Use an ancestry dna site and rummage through the raw data

TMAU Webinar #5 : Preti et al