BORC Podcast of Dr Robin Lachmann conference

BORC (Body Odor Resource Center) has been arranging a number of conference calls with people that may be of interest to people who have trimethylaminuria (TMAU)

The most recent conference call was with Dr Robin Lachmann of the Charles Dent  Metabolic Unit in London. Dr Lachmann has a few years background in seeing TMAU patients.

A podcast of the conference call can be heard on the BORC podcast website
Dr Robin Lachmann conference call with BORC

BORC youtube channel : link

My view on TMAU
Personally I think people with a problem with their FMO3 enzyme may be prone to smelling of various sulfides and amines that are oxidized by FMO3. This would include trimethylamine but it may be a 'small player' in the number of compounds the person smells of. TMAU came about because the professionals at the time were only looking for trimethylamine. There has been no attempts to look for other compounds. However TMAU is a useful lever to rasie awareness of the concept of metabolic malodors, and trimethylamine should also  be a good biomarker of FMO3 function which I suspect is the main enzyme responsible for most cases of metabolic malodor.

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By sysbodyodor

metabolic malodor patient advocacy, support, tmau, video, webinar, website

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Ellie interviewed about TMAU in UK media

Ellie has been diagnosed positive for trimethylaminuria (TMAU) and this week appeared in many UK media platforms to be interviewed about her TMAU. This included newspapers, radio and TV. It was very much like a UK TMAU Awareness Week. Ellie has previously appeared on the Food Hospital TV show.

Ellie on UK mid-morning UK national TV show 'This Morning'

On BBC Radio Oxford

On BBC Radio 5live

On BBC Radio Berkshire

Ellie in the papers :
 Ellie talks about TMAU in the Daily Mail
 Ellie talks about TMAU in the Daily Star
 Ellie talks about TMAU in the Daily Mirror 

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By sysbodyodor

fecal body odor, media, metabolic malodor patient advocacy, personal stories, support, video, youtube

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Skype counselling for people with odor concerns

example of a skype counseller

I think it would be good for our community if someday we had a network to online video counselling (probably through Skype) with a counseller(s) that specialize in people with odor conditions. Perhaps even a genetic counseller via Skype.

For now though this is only a dream, but it seems  that the 'skype counselling' business is flourishing. In the meantime I wish to draw your attention to a few links in this area, which perhaps will lead you to find someone suitable in a google search of your own.

Links :
This link is for a business called mooto.com, which is a list of British counsellers offering their services via Skype for a fee (usually around £30). It seems to offer different types of counselling, including hypnlotherapy.
mootu.com
Skype counselling directory hosted by mootu

Genetic counselling (not online)
We also include a page to search for genetic counsellers, since many have a genetic odor condition. However, probably all of these will not be available for online counselling
USA : Find a genetic counseller

Perhaps this will inspire some to become online counsellers of some kind.

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By sysbodyodor

support

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