News & Views on Systemic Body Odor and Halitosis such as trimethylaminuria TMAU. If you have fecal odors or bowel odors it may be metabolic/systemic

5 March 2018

Donate to RE(ACT) TMAU Fund

What is RE(ACT) ?
It's part of the Swiss charity 'Blackswan', for rare disorders, founded by Dr Olivier Menzel. It's intended as a neutral transparent Crowdfunding site for rare disorder communities.


Who is Dr Olivier Menziel ?
He is a Swiss pediatrician who saw the need for a site to help self-funding for rare diseases.

What happens to the money ?
Researchers will put forward a research proposal to the REACT review committee. If approved, the research would get the funding they request.
It also works in reverse, a study is put forward. and a page is created for that study. All funds in this case would go to the study.
THERE IS A 5% FEE FOR REACT.

What is the current fund for ?
It is a TMAU GENERAL Fund, waiting for research proposals.

Why should I donate ? 
The money will sit there either forever or until a study is put forward and approved.
You can see the total.
Blackswan is a registered charity

How does this compare to the NORD Fund ?
The NORD Fund does not tell you the total.
My understanding is that if no donations are made to a fund after a certain time, the money transfers to the NORD General Fund,

Have any TMAU studies been put forward to  REACT ?
One was put forward that involved drug repurposing.
It got approved, but for some reason it never appeared.
At the time the REACT site looked very amateur, and contact was patchy.
It looks more professional now.
Whatever the case, the money seems to be secure.

Any catches ?
When in the Donate process, make sure you choose 'TMAU fund'
and not 'REACT General Fund' (i.e. a fund that helps running REACT).
5% UPKEEP FEE.

Donation suggestions :
Money scarce : 5 euro/$ ?
Average money : 10 - 20 euro/$ ?
Well-off : 100+ euro/$ ?

Total at time of writing : 35 Euros

Blackswan charity

Success Story :
Research study raises 150,000 Euros  via REACT



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Update Aug 17 :
Genos is back with it's EXOME test
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Note :
Exome/Genome testing may be better option than single gene testing.

See this post : link

Note : Genos Exome Testing.

Exome testing is almost the same price now as single gene testing. Also Genos is consumer friendly, which standard DNA labs are not.

So the blog offer to test solely for FMO3 is almost obsolete, and so no longer offered.


Does Genos fully sequence FMO3 gene ?

At the moment it is not clear, but hoped this will become clear over the next few months

Note : possible 'wild west' way of testing FMO3
Use an ancestry dna site and rummage through the raw data

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