News & Views on Systemic Body Odor and Halitosis such as trimethylaminuria TMAU. If you have fecal odors or bowel odors it may be metabolic/systemic

19 January 2017

REACT TMAU Fund : spare a $5 ?

RE(ACT) rare disease site.
Meant for research crowdfunding.
Part of the BLACKSWAN charity.
Based in Switzerland.
Founded by pediatrician Dr Olivier Menzel.

Idea behind RE(ACT)
Rare disease groups can use it as a crowdfund site for research into their disease.
Researchers are supposed to put forward research proposals.
REACT has a expert committee who accept/reject proposals.
If no proposal is ongoing, the money goes in to a fund awaiting proposals.

RE(ACT) TMAU Fund
Throw them $5 ? (or EU/£ )
Problems with REACT
Staff seem to be not around.
Seems to be no users around.
Seems to be only one research fund ever raised of all the disorders.
Generally it seems neglected.
Yet they seem to do annual conferences.

REACT TMAU FUND : throw a $5 their way ?
Maybe if you have a spare 5 $/£/EU you could donate it to the TMAU Fund as a wake-up call.
Consider it money wasted.

Good things about REACT TMAU FUND
You can see the amount raised on their site.
Money does seem to at least stay in the fund (possibly forever).
Does not seem to get transferred into a general fund if deemed redundant.

SYSTEMIC MALODOR/TMAU community should have their research fund(s)
examples, Research Fund(s), campaigns such as awareness campaigns (e.g. Bus ad, conference) ).
Main ideas :
Needs to be transparent.
Needs to have broad support.  
Needs to be trusted etc.

Crowdfund campaigns etc
Examples : Individuals or small groups could start TMAU/Malodor crowdfunds.




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See this post : link

Note : Genos Exome Testing.

Exome testing is almost the same price now as single gene testing. Also Genos is consumer friendly, which standard DNA labs are not.

So the blog offer to test solely for FMO3 is almost obsolete, and so no longer offered.


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