News & Views on Systemic Body Odor and Halitosis such as trimethylaminuria TMAU. If you have fecal odors or bowel odors it may be metabolic/systemic

30 March 2016

Update on stats of Cassie TMAU video

TMAU activist Cassie appeared on UK TV program Medical Mysteries last Thursday (March 2016) to raise awareness of trimethylaminuria (TMAU).

This blog uploaded a copy of the video to our Youtube Channel.

Regular readers will be aware it got a quick surge of views (around 2600) in 3 days. Below is the info I have on the stats of the youtube video and the TV show itself.

1. The TV show itself got around 0.9 million viewers on first showing. This is probably average for Channel 5 UK in that timeslot. It will also be repeated quite often in the next few days/weeks. It's a fair showing, though TMAU has appeared on UK shows with around 4 million. Despite this , it still seems probably 99% unknown in the UK. I reckon probably a public ad campaign will be needed to penetrate the public conscious about TMAU.

2. There doesn't seem much new activity on the TMAU forums after the program, such as rareconnect and tmau.org. I thought there would be some new posters but it seems not.        


Youtube channel stats on Cassie TMAU video :

1. At first there was a huge surge for 2 to 3 days almost immediately (2,600 views in 48 hours), but now it has tailed away to around 40 views a day. I now know this surge was due to the video being embedded on Romanian news website Kanal D Romania : TMAU on Kanal D

This made up around 95% of the first 2 day views.

2. The video is blocked in the UK due to copyright restrictions. This means no-one in UK can watch it and it won't show up in UK google searches. But it is viewable everywhere else it seems, and my channel copyright status is 'good', which means the copyright owners are allowing it to be viewed outside UK. I presume there is an ad on the video, with the money going to the copyright holders.

3. So far, outside of Romania there has been few viewers. Perhaps 200 or so in 5 days. Maybe a few initially were subscribers. It does not seem to be getting many clicks on e.g. google search, but I am hopeful this will grow. I thought it may be able to go viral but this now seems not the case. May now be the same as previous videos and 'preaching to the converted' or those very worried about an odor, but not reaching the general public. We will see.

So thanks again to Cassie for putting herself forward to appear on TV about probably the most embarrassing condition. It is something 99%+ of us would not do. And who knows how many people it will help, as well as the passive benefit of people being able to view the video on youtube for foreseeable future.

My random suggestions for TMAU / Systemic Body Odor campaigns :

Ads that reach the public :
e.g. a bus ad (1) via London (£900 for a month ?) , New York.
e.g. a TV ad. On lesser programs these can be relatively cheap but need to make ad etc. Much dearer than bus ad.
e.g. Stationary public place ad. Not so keen on this in case it's defaced.

Awareness campaign to Dr's surgeries
I had a look for a list of surgery Dr emails but could not find one other than paid for mailing lists.

Apply to shows / magazines / newspapers that have high profile.

Links :
Original blog post about Cassie video 
Blog YouTube Channel (Systemic Body Odor)
        
My view on TMAU :
Personally I think if someone smells metabolically, then an enzyme is at fault and they may smell of any substrate that enzyme neutralises. In the case of FMO3 this is many sulfides, amines, and phophines. Through a quirk of fate someone with a fish smell was tested for TMA 46 years ago, and since then no-one has researched the concept of sysbo since then. So TMAU is the 'only peg' we have to hang the concept of sysbo on, so I see it as a trojan horse to raise awareness about systemic body odor.

Get new posts by email


2 comments:

Anonymous said...

Forward to 1:08 https://youtu.be/_HWTyd2S_-M

sysbodyodor said...

thanks. they done a good job of quickly going over what is known about systemic smells. Of course 'tmau' is the only one mentioned as a 'benign' genetic malodor. I posted there to try and get some traffic this way.

re Email sub service : Google is stopping this service JULY 21 new post emails will no longer happen

TMAU Stories

systemic BO/halitosis important links

MEBO Research malodor study 2016

Youtube

FMO3 reference

Blog Archive

TMAU/FMO3 research

Systemic Body Odor links

email :
sysbodyodor@gmail.com

Do you have systemic body odor ?

FMO3 Survey Form

FMO3 DNA test result survey
for those who have FMO3 DNA tested
survey still OPEN

TMA blocker pill (links)

P&G - Cleveland press release aug 2015
1st mention of 'DMB pill' dec 2015
FMO3 DNA testing
Update Aug 17 :
Genos is back with it's EXOME test
link

Note :
Exome/Genome testing may be better option than single gene testing.

See this post : link

Note : Genos Exome Testing.

Exome testing is almost the same price now as single gene testing. Also Genos is consumer friendly, which standard DNA labs are not.

So the blog offer to test solely for FMO3 is almost obsolete, and so no longer offered.


Does Genos fully sequence FMO3 gene ?

At the moment it is not clear, but hoped this will become clear over the next few months

Note : possible 'wild west' way of testing FMO3
Use an ancestry dna site and rummage through the raw data

TMAU Webinar #5 : Preti et al