Young lady TMAU essay for Rare Disease Day Flickr project

# I’mNotTrash-TMAU

A young lady has written an essay about living with trimethylaminuria (TMAU) for a Rare Disease Day project on Flickr created by rareconnect.org. The image that goes with the story is striking and thought provoking. Perhaps others can also create images that get across points about malodor quickly to the public, such as TMAU or other systemic body odor or halitosis conditions. You can read her article on the Flickr website.

 Click on the image to read the article on Flickr

My comment on the image :
I am very impressed with the message of the image, as the words capture the point very well that most people suffer from a wide spectrum of malodors. Personally I think most people with 'fecal body odor' probably have an issue with all FMO3 substrates, most likely due to a weakness in FMO3 function of some sort. FMO3 oxidizes many of the malodorous sulfides and amines generated in humans. I may try to create my own 'campaign banner' to get across this message. These sort of images could play a role in raising awareness of systemic malodor syndromes I think.

The image would make a good billboard poster or bus poster for an awareness campaign

Link to the article : TMAU testimony on Flickr Rare Disease Project
Link : Her Facebook TMAU Campaign Page

Link : rareconnect.org TMAU group
Link : Rare Disease Day

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By sysbodyodor

fund raising, join in, media, personal stories, raising awareness

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