Aim : TMAU UK All Party Parliamentary Groups.
What is this ? A group of MP's and/or Members of the Lords who take an interest in a subject and have meetings on it (e.g. quarterly).
How ?
Contact your MP and/or House of Lords members.
Contact your MP : link
Contact House of Lords member : link
Ask them if they may set-up/join a TMAU APPG.
Note :
You can only contact your OWN MP, not any MP.
House of Lords : You can contact anyone.
HoL listed as having an interest in 'health' : link.
Chances of TMAU APPG : 5% ?
There is a 'rare disorder and undiagnosed' group : link.
There is also a group for 1 rare disorder : link.
Brief reading suggests it was set up by a MP due to a constituent who runs a charity for the disorder, but it says they reckon the MP wants out of it now.
An example email will follow in a follow-up post.
Other countries :
Perhaps others can try in other countries too.
Example : A TMAU 'Patron' or house group etc.
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